So much has happened over the last few days...
Our SuperJack's team participated in the Relay for Life last weekend and raised well over $5,500 for the Cancer Council. Our team 'baton' was the beautiful SuperJack cape Kylie made. It was a fantastic weekend and I was very sad that you weren't there. I walked the 'survivors and carers lap' with tears in my eyes. On Sunday morning, when the survivors did the 'Hi 5' reverse lap and I was giving dozens of cancer survivors a big Hi 5, I had visions of you walking that lap next year.
At the time of the event, you were in hospital for your first chemo, but I took you to the athletic track on Sunday afternoon to walk our own symbolic lap with your SuperJack cape on. I carried you on my shoulders because you were too tired to walk. I told you to have a good look around because next year you're going to be our team captain.
On Tuesday you had chemo again. This time they gave you asparaginase. You got an anaphylactic reaction to it and needed adrenaline to stabilise you. Pretty scary. We ended up staying at the hospital until 9.30pm (instead of 5pm) because they had to keep you under observation.
The problem is now that they can't give you that drug again and need to figure out an alternative. Karen told us they're discussing it with specialists in Europe. You may now need this drug in a different form and administered every two days instead of fortnightly. Many additional trips to Randwick...
Whilst I was in hospital with you, I texted a few friends to vent about our rough day. Sarah (Ella's mum) and Wayne (Ben's dad) jumped in their car at 9pm and drove over to our house to clean up the entire place, do the dishes, laundry, etc., so I could come home to a clean place. We are so lucky to have such good friends, Jack. I don't know what I would do without my friends at the moment.
In Belgium too we have lots of people who are trying to help. Some of my friends have even organised a party to raise money so I can afford to pay for help every once in a while. Since they live too far to come and help us, they thought it was the best alternative. How nice is that!
Big day on Wednesday, as oma finally arrived from Belgium! You were very excited about her coming.
In Belgium too we have lots of people who are trying to help. Some of my friends have even organised a party to raise money so I can afford to pay for help every once in a while. Since they live too far to come and help us, they thought it was the best alternative. How nice is that!
Big day on Wednesday, as oma finally arrived from Belgium! You were very excited about her coming.
On Thursday we had a clinic appointment to discuss the events of last Tuesday.
On Friday you had another bone marrow aspirate (the 5th one!) and lumbar puncture. You are so good with these things! You've completely stopped crying for your blood tests and you don't think anything of the surgery (you're entirely focussed on the after-surgery chips and pie :-) ). I still get teary each time you're being put to sleep in the operating theater. After the surgery (and chips and pie) we went to the Starlight Express Room where you played Mario for more than an hour. You got a prize for being the fastest racer ever and couldn't believe your luck.
Today you went to Randwick with dad for another round of chemo. I spoke to you this afternoon and you seemed totally fine. Unfortunately, Emily and Maya are both sick so you can't come home today. You'll be staying with dad for the next couple of days.
You're doing extremely well, SuperJack, and I'm very proud of you.
Love you lots
Mammie
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