Monday, 26 March 2012

The big day...

Dear Jack

Today was supposed to be the big day. We were finally going to find out what's wrong whith you. We had to wait until 4pm to see the doctors, which caused a bit of stress around who was going to pick up Emily and Maya from childcare.

Finally Prof. Marshall, Dr. Mimi Lu and Fellow Karen Gomez came to see us. Dr. Marshall said the biopsy was again inconclusive. He said it only happened in less than 1% of patients that it was so hard to get a diagnosis. There were possibly some leukemia cells in your bone marrow but they weren't sure. They did find a lot of scar tissue, which is unusual. Prof. Marshall said that leukemia is still a probability, whilst aplastic anemia and an infection have now been ruled out. He said that you may have a very early stage of leukemia and therefore it's very hard to pick it up.
Another bone marrow aspiration will be done tomorrow and this time the most senior hematologist in the hospital will do it. If that bone marrow aspirate doesn't give us any answers, they will just have to let you go home and see what happens. A form of leukemia will probably eventually develop to a stage where they can pick it up and categorise it. How very frustrating! 

Luckily, you don't seem to be overly faced by the prospect of another bone marrow aspiration tomorrow, despite the pain you had after the first one and the horrible experience of the anaesthetics.

Love
Mum.

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